Update on my status

juli 6th, 2017|0 Comments

Hi everyone, I know it´s been quiet from my side since a long time nowm but sadly that is because I simply have nothing to report. My sickness still hasn´t been figured out, all we [...]

What a month. Echos, CT scans, mri, so many bloodtests I can’t even count them any more, emg, longfunction test, and so many other tests I can’t remember. Today it was time for an operation : a muscle biopsy. Let’s hope they figure out what the hell is wrong with me :).

mei 24th, 2017|0 Comments

What a month. Echos, CT scans, mri, so many bloodtests I can't even count them any more, emg, longfunction test, and so many other tests I can't remember. Today it was time for an operation : a muscle biopsy. Let's hope they figure out what the hell is wrong with me :).

It’s raining, but I don’t really care. I’m outside again! After a week of not breathing fresh air, I was finally able to leave the hospital today. Also good news is that my heart is undamaged according to the mri scan. It is however not all good news I’m afraid. I’m still forced to take a month break as my blood levels are still on the wrong side of the scale. Hopefully after that period everything will be fine again… #finallyfree

maart 1st, 2017|0 Comments

It's raining, but I don't really care. I'm outside again! After a week of not breathing fresh air, I was finally able to leave the hospital today. Also good news is that my heart is undamaged according to the mri scan. It is however not all good news I'm afraid. I'm still forced to take a month break as my blood levels are still on the wrong side of the scale. Hopefully after that period everything will be fine again... #finallyfree

You know what we need? More heart sensors! Still under (very) tight control for the moment 🙄

februari 27th, 2017|0 Comments

You know what we need? More heart sensors! Still under (very) tight control for the moment 🙄

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